Why Hire a Care Manager?- Sound Options Reducing Stress for Families

 

In a New York Times Article, blogger Jane Gross asked the important question, Why Hire a Care Manager? To answer this question, we have to understand how Care Management is defined and what it looks like in action at the family level.  
 

Care Management Defined

According to the National Associated of Professional Geriatric Care Managers, a GCM is a health and human services specialist who helps families who are caring for older relatives. The GCM is trained and experienced in any of several fields related to long-term care, including but not limited to nursing, gerontology, social work, or psychology, with a specialized focus on issues related to aging and elder care.

The GCM assists older adults and persons with disabilities in attaining their maximum functional potential. and quality of life. In addition, the GCM is an experienced guide and resource for families of older adults and others with chronic needs. 

Why Hire a Geriatric Care Manager? By Jane Gross
New York Times Blog, The New Old Age

During one especially dicey period with my mother, then in an assisted living facility, my brother and I hired a geriatric care manager, first for a consultation and then for additional help at an hourly rate. It felt like such an extravagance, given that we weren’t rolling in money, but the care manager helped solve a series of complex problems that I doubt I’d have solved by myself, mostly involving brokering a compromise with the facility, whose management wouldn’t let me hire a private aide for my mom but could not provide what she needed.

Relations had soured to the point that all I could do was scream at them, which was making a bad situation worse, so having an advocate was a blessing. Also, the care manager, who visited regularly with my mother, often was privy to concerns she was keeping from me, and she was always there for me by telephone, which was a lifesaver.

Many of you have asked questions about geriatric care management and how it is performed. I posed some of them to Patricia Mulvey, a care manager who has worked in hospitals, nursing homes, home-care agencies, hospice and bereavement programs, and as an independent contractor. Currently she is the director of the private geriatric care management service at the Jewish Home Lifecare System, which runs several long-term care facilities in New York City and its suburbs. With some modest editing, here are her thoughts.

Q: What circumstances are most suitable and valuable for using a geriatric care manager? To put it another way, if you were in a caregiving situation and had limited means, when would this extra expense be money well spent?

A: An example is when things are going well — the elder is managing on his or her own, with little help and oversight, but the family is noticing slight changes, or the physician has indicated a change in status or diagnosis. This would be the time where it would be very beneficial for the family to know what resources are available to them, how much they would cost, how to access these resources and what options are available. Some of the key points to cover would be these.

  • What is day care? What types of rehab might be available? What does “short-term rehab” mean?
  • What is “respite” and where might it be available? Who pays for it?
  • Information about home care services. What kind of care and how much care can be provided at home?
  • Who pays for what services? This is key because a common misconception is that Medicare pays for long-term care.
  • What is the difference between Medicare and Medicaid?
  • What does insurance, either medical or long-term care, actually pay for?
  • What happens at the end of a hospitalization when discharge is imminent? Time is of the essence, because it is often Medicare or the insurance company’s determination as to how quickly things related to discharge must happen.
  • Is the health care proxy in place, appropriately witnessed and current? Is there a power of attorney? Does your state recognize other documents, such as a living will?
  • Has the conversation about the wishes stated in the health care proxy been discussed with the individual who has been nominated proxy? Does the physician have a copy of the document?
  • With a long-term care insurance policy, what is required for the policy to begin coverage?
  • What resources are available to pay for services? How much can the family afford? And who is going to pay for what?

A relationship with a professional geriatric care manager can allow the children of the elderly person to be children, while someone else manages the situation. When a son or daughter is providing the hands-on care to the parent, the quality time they have to be there emotionally for their parent is limited…. The care manager can handle the difficult interpersonal issues, address the immediate problem, remain connected once the crisis passes and get back involved as the situation requires it.

Q: I’d imagine that long-distance caregiving and trying to keep someone in their own home with reliable help would be the two hardest things to navigate without professional assistance. Can you tell us some of the special challenges of having an elderly parent in Florida, or Chicago, or any place where you can’t go scope out the situation regularly and thus need eyes and ears on the ground?

As for home care, I know from friends how arduous it is to manage a staff of people working in a parent’s home. They quit. Or you have to fire them. They compete with one another for who’s top dog. The client, who is so dependent, becomes almost an emotional hostage, needing the aide so badly they may be afraid to complain or offend. How does a care manager guide families through this?

A: It is imperative to have eyes and ears available locally. This is not a process that can be managed long-distance, even as in-touch as we are with cell phones, text messaging and video conferences. We always work with another care manager in the other location to have an independent individual assess the facility and situation. I’ve frequently moved parents from the tri-state area to California, Florida or Arizona to be closer to their children, and moved the parents to the New York area from those very same states. Moving is one of the most stressful life events we can experience, and this applies at any age. The client needs as much support as possible, someone to help them pack, stop the newspaper, disconnect the cable, and much more.

Anyone with help in the home most definitely would benefit from help coordinating the aides and other staff going in and out of the home. Adding home care to the services delivered to an elder can be very traumatic — it’s saying that “you can’t take care of yourself anymore.” How would you feel if someone you didn’t know turned up one day and moved into your spare room, cooked meals in your kitchen, sat with you when you were watching TV or reading? It’s a huge transition for people to incorporate help into the home.

A care manager can closely monitor the situation, soothe over the hurt feelings and address the anger that comes from losing our independence. And yes, you are right, the elder may become an emotional hostage, afraid to say something for fear of retribution or recrimination. It’s best to let a professional address issues the elder is concerned with.

 As the premier eldercare agency in the Puget Sound, Sound Options has been providing Professional Geriatric Care Management Services since 1989. For more information on our Care Management, Eldercare Coaching, or Home Care find details at SoundOptions.com

 

Published on April 30, 2013.